(Please see ‘About’ for the purpose of this blog)
PS: For new visitors, I encourage you to read from my first post as my posts are usually continuations. First post here: https://godvsdepression.wordpress.com/2015/09/02/depression-really/
It’s been 2 years since my last post. The dizziness robbed me of everything even my inner being. A not so interesting variety of things has happened within that period. First, good news. I have found a diagnosis that accurately describes and acknowledges all my symptoms that began in 2014 after the accident and has left countless doctors and specialists clueless.
Vestibular Migraine and Persistent Postural Perceptual Dizziness (PPPD). Here are some of the symptoms of Vestibular Migraine:
- Constant Dizziness
- Constantly feeling unsteady, swaying, rocking with motion sickness, like you’re in a rocking boat
- Vertigo – triggered by certain movements of head and body or nothing at all at times
- Nausea and vomiting
- Balance problems
- Extreme motion, light and sound sensitivity
- Disorientation and confusion – like a brain fog
- Migraine Headaches especially at the back of your head down to the neck, also front and top of head
So this ENT doctor (third I’ve seen) immediately knew what was going on with me. He’s had many patients with identical symptoms ranging in severity. I was surprised to find out that Migraines not only come in a form of severe headaches but also chronic dizziness! *cue “WOW!” sound effect. But FINALLY, everything made sense and I started trying out some medication. (More on that further).
After about 4-5 months of trial and error with the adjustment of dosages, the medication seemed to have reached its limit. (surprise, SURPRISE.) I am very grateful to have found this doctor who really gives from the heart. He is passionate, positive and never gives up on his patients. Although I must admit, his positivity is a little annoying sometimes. What? I’m only human. A sick and dizzy one.
So apparently, he had been holding back on a second diagnosis in hopes that the first one would be and end-all. PPPD was the name. He informed me that not many doctors acknowledge this condition and I didn’t understand why. It correlates and syncs so much with the symptoms of Vestibular Migraine. You can just Google PPPD to get more information.
The good news right there. Now, the bad news, PPPD does not have a direct-straight-away cure. I am now on Notriptyline HCL 30mg every evening to treat the migraine (which comes in a form of dizziness and occasional headaches for me like I mentioned) and I just had 2 sessions of Vestibular Rehab. I am also trying out a psychologist who works with patients like myself to help cope with the mental and emotional stress of being dizzy all the time. (Trust me it can drive you NUTS).
I still do have bad days but I am still doing my best to stay positive and practice doing my vestibular exercises everyday, stepping out of my house more often to increase my tolerance to motion stimuli etc. Walking down the aisles of the grocery store is 50% better now compared to before and I do not get vertigo every night when I lie on my bed in an attempt to sleep unlike before. WOOHOO
To anyone suffering from the same symptoms I have or for anyone you know, please do mention to the doctor about Vestibular Migraine. It is SEVERELY overlooked and UNDER-DIAGNOSED. Don’t be afraid to try and test out medications and dosages, you have to try it to know what works for your body.
To all Dizzi-ers out there, hang tight. Trust God because he will bring victory to you. He wants you to overcome this even with your doubt. God is not put off by lack of faith. Sarah (Abrahams wife) did not believe she could get pregnant at old age though she denied that she doubted and Jesus healed the servant of the Roman Centurion, a pagan. There is nothing He cannot do. Just hold on. I’ve held on for 3 years and counting and I feel it in my bones, although some days I just want to blow my head off. Everything has a purpose.
There is good out of every suffering.
Until next time, I will do my best to post regularly.
“Is there anything too marvellous for the LORD to do?”
Be kind to one another,
Tweet me @Godvsdepression